Social media influencer Brooke Eby died at 37 from ALS complications after years of documenting her decline and pressing for more research funding and public awareness.
NBC Chicago reported that Eby died Thursday from complications of amyotrophic lateral sclerosis, known as ALS, according to the ALS Network.
She was 33 when doctors diagnosed her in 2022. By then, unexplained symptoms in one leg had already forced a limp and years of repeated testing before anyone could name the disease.
ALS is progressive and still has no cure. It typically leaves patients two to five years. Eby used that time to show the public exactly what the illness does.
On TikTok under @limpbroozkit, and on Instagram, Eby built a community of hundreds of thousands of followers. Some of her videos reached millions of viewers.
She filmed the day-to-day reality as ALS stripped her ability to walk, then talk, then breathe. Her stated goal was plain: raise awareness and push for more funding and research.
In one video she said she had started feeling like a ticking time bomb. In another she rejected the idea of peaceful acceptance.
Sam Jarvis, director of communications for ALS United Illinois, described the loss in direct terms.
"It was really hard to hear about Brooke’s passing she has been a light to people currently living with ALS and she brought so many people in on that journey and what that journey looks like,"
Jarvis also pointed to unfinished work. The ALS ice bucket challenge once brought a flood of awareness and research dollars, he said, but the momentum has to continue.
"It’s been exciting in the past years to see some of the treatments come available for ALS and we’re slowly building progress and it can’t come fast enough."
ALS United Illinois notes there is still no cure. The group works daily to support families hit by the disease.
The numbers are brutal and steady. Every 90 minutes someone is diagnosed. Every 90 minutes someone dies from it.
Eby’s public record ran from first limp to final loss of speech and breath. She refused to hide the cost. She turned private decline into a standing demand for faster science and real money behind it.
When a young advocate spends her last years showing the country what this disease steals, the least the system can do is stop treating research urgency like optional paperwork.
